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Latest ALS nEWS & CLINICAL INSIGHTS


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Featured Content



** Filmmaker with advanced ALS rallies friends for final documentary (http=
s://us.list-manage.com/4WN5C5NaheU?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DSman4aSJZLoOni9RNikyF7GGwUAsAfmkSUu3M3s0-F8R3MTjL5oiBDCTVtwFXaM3Fp0SolEajq6j9UTB4o7M5iz7bA=3D=3D)
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Filmmaker and University of Virginia graduate Chris Farina had the idea fo=
r a documentary about death and dying about 10 years ago. Now he=E2=80=99s=
 in the final stages of amyotrophic lateral sclerosis (ALS)=2C and is rely=
ing on friends to help him complete the project. One of those friends is f=
ellow documentary filmmaker Paul Wagner. =E2=80=9CHe=E2=80=99s [=E2=80=A6=
]

The post Filmmaker with advanced ALS rallies friends for final documentary=
 (https://us.list-manage.com/HPO4Q6lMwkv?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3D3noZqZpeHBuyijatTxT45RS0zv7jF8oQjlr-7vII5A4hvek9aVjgUQqPaaEx) appeared first on=
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** Personal preferences key to medically assisted death requests in ALS (h=
ttps://us.list-manage.com/TvEVRmUIlmh?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DFEaHUZ29IqerIp-X-Pq_xaVv9jGmbM40tkf3-OZY5IOqcaLLAvMdocjyVXlfZW_To5xUql-5mMUl3F3zU_rBmVGAog=3D=3D)
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Among people living with amyotrophic lateral sclerosis (ALS)=2C requests t=
o be referred for medical assistance in dying=2C known as MAiD=2C may have=
 more to do with individual preferences about life-sustaining intervention=
s than disease severity. That=E2=80=99s according to a new Canadian study=
 showing that people with ALS using noninvasive ventilation (NIV)=2C a for=
m of breathing support=2C [=E2=80=A6]

The post Personal preferences key to medically assisted death requests in=
 ALS (https://us.list-manage.com/RNzRn0miG2O?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3D9wTFNB8Ib0YcrG-Vgq3mOLxHj8wqQRKRA1RNTYMuuYedyVWBZzGNM7-etSSr) appeared first=
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** Being an ALS caregiver was as hard emotionally as it was physically (ht=
tps://us.list-manage.com/15wr_FOXnCo?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DJYpgvkSAIAxhEBg7mL7dlz7YjnPbhxVdfc__U5g7S7Jg6XzG1OJOBMBmI36F8hKSFWJkby7ZH74bwcYQ1H-cz4QZ0Q=3D=3D)
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When my late husband=2C Jeff=2C was diagnosed with ALS in the fall of 2018=
=2C there were many unknowns. We didn=E2=80=99t know how fast or slow his=
 progression would be. We didn=E2=80=99t know the course that ALS would ta=
ke in his body=2C or when we would need interventions like a feeding tube=
=2C a wheelchair=2C or an [=E2=80=A6]

The post Being an ALS caregiver was as hard emotionally as it was physical=
ly (https://us.list-manage.com/17oaETTihGd?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DXLFfVyk8Phf2Y4EnIUv9a8X-u1gdk8Et9EIoJJmCoRyfRn3-IkDBXowgckjT) appeared first o=
n ALS News Today (https://us.list-manage.com/Jr4rYaqeuiw?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DS-qU1VOTxSXMTMyFkiFpvmUx9yB9M0O6e7HoWCKiQkjizmHU71GHkgvFogof) .
Continue Reading (https://us.list-manage.com/QnRhxGao2z7?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3D8CLpIPNhfKz4Dqkdx5_tRaiPnQkVjXwpHQhoCNhRHQ5V9JptT9lK-3wqQ1ePHEfRspqi5nS7J7k0p1-3TxBR_JDRDA=3D=3D)


** Finding moments that transcend the grief of ALS (https://us.list-manage=
=2Ecom/w0nx22hNIWn?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DJuufNGJFTx4gU8Fy9r_1xsnMSlidftZg9s_wWIzDHobO_eKqYv3ViduoJmaDtyKUJ_NeHppXrKOr62moOTQ3ubIqOg=3D=3D)
------------------------------------------------------------
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A few months after my husband Todd=E2=80=99s ALS diagnosis=2C we traveled=
 with our children from our home in southeast Wisconsin to meet up with To=
dd=E2=80=99s sister and brother-in-law at a rented condo overlooking Lake=
 Delton in Wisconsin Dells. We had recently returned from Mayo Clinic in M=
innesota=2C where Todd went to get a second opinion. [=E2=80=A6]

The post Finding moments that transcend the grief of ALS (https://us.list-=
manage.com/AYVCjHIPogN?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=
=3D7jjoYv_hQXdc-DQ_hyjQsTbOiQmCoN_J5rolMF4xl7AxhL-Og75bDro2gWXs) appeared first on ALS News Today (=
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Continue Reading (https://us.list-manage.com/15BAoA5shkp?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3Dlst2uMZ7dB3f0iEr-zktVB5U_YOLfPkB2WXfSgHHZiY5JTs85Vvm9zG1XOARqf5Ze1ExLQ_Bp7IiajJwe3X9F9L_FQ=3D=3D)


** Enrollment complete in Phase 2b trial of add-on therapy for adults with=
 ALS (https://us.list-manage.com/ode9oiji01D?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DRnxle4zksNHiCmKiGxUP7yyD07p7O4CcWBNZZiEY890nnrf8HB3FNc1HLoIThpj5c3bhdekTTEYDs5RM_adxHf6WIQ=3D=3D)
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Enrollment of adults with mild-to-moderate amyotrophic lateral sclerosis (=
ALS) has been completed in a clinical trial testing PHENOGENE-1A as an add=
-on treatment for the neurodegenerative disease. Enrollment of about 105 p=
articipants in the Phase 2b trial (NCT07142291) wrapped up in late August=
=2C and they were randomly assigned to receive one of two doses of PHENOGE=
NE-1A [=E2=80=A6]

The post Enrollment complete in Phase 2b trial of add-on therapy for adult=
s with ALS (https://us.list-manage.com/pc_rmF4qFxm?e=3D006462e992&c2=
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rmal;text-align: left;mso-line-height-rule: exactly;-ms-text-size-adjust:=
 100%;-webkit-text-size-adjust: 100%;word-break: break-word;line-height: 1=
50%;">

                            <!-- Section Label -->
<table cellpadding=3D"0" cellspacing=3D"0" role=3D"presentation" style=3D"=
margin-bottom: 16px;border-collapse: collapse;mso-table-lspace: 0pt;mso-ta=
ble-rspace: 0pt;-ms-text-size-adjust: 100%;-webkit-text-size-adjust: 100%;=
" width=3D"100%">
=09<tbody>
=09=09<tr>
=09=09=09<td style=3D"background-color: #1754ff;border-radius: 2px;mso-lin=
e-height-rule: exactly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust=
: 100%;" width=3D"4">&nbsp;</td>
=09=09=09<td style=3D"padding-left: 8px;mso-line-height-rule: exactly;-ms-=
text-size-adjust: 100%;-webkit-text-size-adjust: 100%;">
=09=09=09<p style=3D"margin: 0px;font-family: &quot;Helvetica Neue&quot;=
=2C Helvetica=2C Arial=2C sans-serif;font-weight: 700;text-transform: uppe=
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e: 18px;line-height: 150%;text-align: left;"><font color=3D"#000000"><span=
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an></font></p>
=09=09=09</td>
=09=09</tr>
=09</tbody>
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<!-- Intro Text --><!-- Feed Block --><br>

<table cellpadding=3D"0" cellspacing=3D"0" role=3D"presentation" style=3D"=
background-color: #F5F5F5;border-radius: 8px;margin-bottom: 12px;border-co=
llapse: collapse;mso-table-lspace: 0pt;mso-table-rspace: 0pt;-ms-text-size=
-adjust: 100%;-webkit-text-size-adjust: 100%;" width=3D"100%">
=09<tbody>
=09=09<tr>
=09=09=09<td style=3D"padding: 16px;mso-line-height-rule: exactly;-ms-text=
-size-adjust: 100%;-webkit-text-size-adjust: 100%;">
=09=09=09<h3 style=3D"margin: 0;font-family: 'Helvetica Neue'=2C Helvetica=
=2C Arial=2C sans-serif;font-size: 18px;font-weight: 700;color: #000000;li=
ne-height: 1.3;display: block;padding: 0;font-style: normal;letter-spacing=
: normal;text-align: left;"><a href=3D"https://us.list-manage.com/62DywRfA=
9X8?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DxWUOI8yjODBPvn0-hBm_TqP72A8nMqzqtm6qNboYMs0yB5-njvRYZ40t72xPr7h81wve1tyKw0R53DD5vFD2vzCwjg=3D=3D" style=3D"text-decoration: none;color: #000000;mso-line-height-rule: ex=
actly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust: 100%;font-weigh=
t: normal;" target=3D"_blank">Filmmaker with advanced ALS rallies friends=
 for final documentary</a></h3>
=09=09=09</td>
=09=09</tr>
=09</tbody>
</table>

<table cellpadding=3D"0" cellspacing=3D"0" role=3D"presentation" style=3D"=
background-color: #F5F5F5;border-radius: 8px;margin-bottom: 12px;border-co=
llapse: collapse;mso-table-lspace: 0pt;mso-table-rspace: 0pt;-ms-text-size=
-adjust: 100%;-webkit-text-size-adjust: 100%;" width=3D"100%">
=09<tbody>
=09=09<tr>
=09=09=09<td style=3D"padding: 16px;mso-line-height-rule: exactly;-ms-text=
-size-adjust: 100%;-webkit-text-size-adjust: 100%;">
=09=09=09<h3 style=3D"margin: 0;font-family: 'Helvetica Neue'=2C Helvetica=
=2C Arial=2C sans-serif;font-size: 18px;font-weight: 700;color: #000000;li=
ne-height: 1.3;display: block;padding: 0;font-style: normal;letter-spacing=
: normal;text-align: left;"><a href=3D"https://us.list-manage.com/xsWqjTtB=
sQ3?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3D-8HqbcG97WhNbz_q2vcu97MDxRT2c3urbCV_cixAv1j3IWvnuYeUvcQy982Vw1eDwz10hqPzNNcnvjwse2Yz68zWAw=3D=3D" style=3D"text-decoration: none;color: #000000;mso-line-height-rule: ex=
actly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust: 100%;font-weigh=
t: normal;" target=3D"_blank">Personal preferences key to medically assist=
ed death requests in ALS</a></h3>
=09=09=09</td>
=09=09</tr>
=09</tbody>
</table>

<table cellpadding=3D"0" cellspacing=3D"0" role=3D"presentation" style=3D"=
background-color: #F5F5F5;border-radius: 8px;margin-bottom: 12px;border-co=
llapse: collapse;mso-table-lspace: 0pt;mso-table-rspace: 0pt;-ms-text-size=
-adjust: 100%;-webkit-text-size-adjust: 100%;" width=3D"100%">
=09<tbody>
=09=09<tr>
=09=09=09<td style=3D"padding: 16px;mso-line-height-rule: exactly;-ms-text=
-size-adjust: 100%;-webkit-text-size-adjust: 100%;">
=09=09=09<h3 style=3D"margin: 0;font-family: 'Helvetica Neue'=2C Helvetica=
=2C Arial=2C sans-serif;font-size: 18px;font-weight: 700;color: #000000;li=
ne-height: 1.3;display: block;padding: 0;font-style: normal;letter-spacing=
: normal;text-align: left;"><a href=3D"https://us.list-manage.com/11zd4Y2W=
IJJ?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DbpedPBNyUY0vnP7HIqMpKS5HVgMm4ePO4EQtWISNjhiXRAFH9lcqYQc6n4lizQMKRMaZzuH7fVlqtUtx8zG9KNdZ5w=3D=3D" style=3D"text-decoration: none;color: #000000;mso-line-height-rule: ex=
actly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust: 100%;font-weigh=
t: normal;" target=3D"_blank">Enrollment complete in Phase 2b trial of add=
-on therapy for adults with ALS</a></h3>
=09=09=09</td>
=09=09</tr>
=09</tbody>
</table>

                        </td>
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=09=09=09=09<!--[if mso]>
=09=09=09=09</td>
=09=09=09=09<![endif]-->

=09=09=09=09<!--[if mso]>
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pacing=3D"0" style=3D"max-width: 100%;min-width: 100%;border-collapse: col=
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0%;-webkit-text-size-adjust: 100%;float: left;" width=3D"100%" class=3D"mc=
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                    <tbody><tr>

                        <td valign=3D"top" class=3D"mcnTextContent" style=
=3D"padding: 0px 18px 9px;color: #222222;font-family: Arial=2C &quot;Helve=
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rmal;text-align: left;mso-line-height-rule: exactly;-ms-text-size-adjust:=
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50%;">

                            <!-- Section Label -->
<table cellpadding=3D"0" cellspacing=3D"0" role=3D"presentation" style=3D"=
margin-bottom: 16px;border-collapse: collapse;mso-table-lspace: 0pt;mso-ta=
ble-rspace: 0pt;-ms-text-size-adjust: 100%;-webkit-text-size-adjust: 100%;=
" width=3D"100%">
=09<tbody>
=09=09<tr>
=09=09=09<td style=3D"background-color: #05D3AB;border-radius: 2px;mso-lin=
e-height-rule: exactly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust=
: 100%;" width=3D"4">&nbsp;</td>
=09=09=09<td style=3D"padding-left: 8px;mso-line-height-rule: exactly;-ms-=
text-size-adjust: 100%;-webkit-text-size-adjust: 100%;">
=09=09=09<p style=3D"margin: 0px;font-family: &quot;Helvetica Neue&quot;=
=2C Helvetica=2C Arial=2C sans-serif;font-weight: 700;text-transform: uppe=
rcase;letter-spacing: 1px;padding: 0;mso-line-height-rule: exactly;-ms-tex=
t-size-adjust: 100%;-webkit-text-size-adjust: 100%;color: #222222;font-siz=
e: 18px;line-height: 150%;text-align: left;"><font color=3D"#000000"><span=
 style=3D"font-size:15px">Community Voices</span></font></p>
=09=09=09</td>
=09=09</tr>
=09</tbody>
</table>
<!-- Intro Text --><!-- Feed Block --><br>

<table cellpadding=3D"0" cellspacing=3D"0" role=3D"presentation" style=3D"=
background-color: #F5F5F5;border-radius: 8px;margin-bottom: 12px;border-co=
llapse: collapse;mso-table-lspace: 0pt;mso-table-rspace: 0pt;-ms-text-size=
-adjust: 100%;-webkit-text-size-adjust: 100%;" width=3D"100%">
=09<tbody>
=09=09<tr>
=09=09=09<td style=3D"padding: 16px;mso-line-height-rule: exactly;-ms-text=
-size-adjust: 100%;-webkit-text-size-adjust: 100%;">
=09=09=09<h3 style=3D"margin: 0;font-family: 'Helvetica Neue'=2C Helvetica=
=2C Arial=2C sans-serif;font-size: 18px;font-weight: 700;color: #000000;li=
ne-height: 1.3;display: block;padding: 0;font-style: normal;letter-spacing=
: normal;text-align: left;"><a href=3D"https://us.list-manage.com/16Fztq94=
QrF?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DPKkLaPsnNDXddA6dBKx1KbTIC18XApHBEWAsgJHV78Bk0KCRZGhaNFLrG1jRoWkKMDy5DOOmhyBb1yd6ko22b-xHAg=3D=3D" style=3D"text-decoration: none;color: #000000;mso-line-height-rule: ex=
actly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust: 100%;font-weigh=
t: normal;" target=3D"_blank">Being an ALS caregiver was as hard emotional=
ly as it was physically</a></h3>
=09=09=09</td>
=09=09</tr>
=09</tbody>
</table>

<table cellpadding=3D"0" cellspacing=3D"0" role=3D"presentation" style=3D"=
background-color: #F5F5F5;border-radius: 8px;margin-bottom: 12px;border-co=
llapse: collapse;mso-table-lspace: 0pt;mso-table-rspace: 0pt;-ms-text-size=
-adjust: 100%;-webkit-text-size-adjust: 100%;" width=3D"100%">
=09<tbody>
=09=09<tr>
=09=09=09<td style=3D"padding: 16px;mso-line-height-rule: exactly;-ms-text=
-size-adjust: 100%;-webkit-text-size-adjust: 100%;">
=09=09=09<h3 style=3D"margin: 0;font-family: 'Helvetica Neue'=2C Helvetica=
=2C Arial=2C sans-serif;font-size: 18px;font-weight: 700;color: #000000;li=
ne-height: 1.3;display: block;padding: 0;font-style: normal;letter-spacing=
: normal;text-align: left;"><a href=3D"https://us.list-manage.com/6OG_Ey7_=
ikB?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DKzn6bA4tTGagGiBskaKKjWbXcFXq8x2jcdXBmvHV15A6hY71pQLTZEyaEd_RvHHve_7LyutIlP0rLIe0RhBBLACdHw=3D=3D" style=3D"text-decoration: none;color: #000000;mso-line-height-rule: ex=
actly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust: 100%;font-weigh=
t: normal;" target=3D"_blank">Finding moments that transcend the grief of=
 ALS</a></h3>
=09=09=09</td>
=09=09</tr>
=09</tbody>
</table>

<table cellpadding=3D"0" cellspacing=3D"0" role=3D"presentation" style=3D"=
background-color: #F5F5F5;border-radius: 8px;margin-bottom: 12px;border-co=
llapse: collapse;mso-table-lspace: 0pt;mso-table-rspace: 0pt;-ms-text-size=
-adjust: 100%;-webkit-text-size-adjust: 100%;" width=3D"100%">
=09<tbody>
=09=09<tr>
=09=09=09<td style=3D"padding: 16px;mso-line-height-rule: exactly;-ms-text=
-size-adjust: 100%;-webkit-text-size-adjust: 100%;">
=09=09=09<h3 style=3D"margin: 0;font-family: 'Helvetica Neue'=2C Helvetica=
=2C Arial=2C sans-serif;font-size: 18px;font-weight: 700;color: #000000;li=
ne-height: 1.3;display: block;padding: 0;font-style: normal;letter-spacing=
: normal;text-align: left;"><a href=3D"https://us.list-manage.com/BZNrWC1Q=
VaF?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DNJPI7jL5vEjYz_hbjhOWu3M2tQCNpFaBXIIUX5SQ0q-1boSAuOhz-MCifP3LSe86HS-1d7xCFNl6x5orDny2a9o-pw=3D=3D" style=3D"text-decoration: none;color: #000000;mso-line-height-rule: ex=
actly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust: 100%;font-weigh=
t: normal;" target=3D"_blank">Putting a spotlight on the challenges of bei=
ng a caregiver</a></h3>
=09=09=09</td>
=09=09</tr>
=09</tbody>
</table>

                        </td>
                    </tr>
                </tbody></table>
=09=09=09=09<!--[if mso]>
=09=09=09=09</td>
=09=09=09=09<![endif]-->

=09=09=09=09<!--[if mso]>
=09=09=09=09</tr>
=09=09=09=09</table>
=09=09=09=09<![endif]-->
            </td>
        </tr>
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</table><table border=3D"0" cellpadding=3D"0" cellspacing=3D"0" width=3D"1=
00%" class=3D"mcnDividerBlock" style=3D"min-width: 100%;border-collapse: c=
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om/xGCAl6WigA8?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DQwzujR-AhwFSJRcLC0zPv2bQRUrk2dgUpqCwGb1Lzd8cu9gkJMmvlEfGmt2K91pKB6EA5e78HHecKV52Q-XDfzln2g=3D=3D" style=3D"text-decoration: none;color: #000000;mso-line-heig=
ht-rule: exactly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust: 100%=
;font-weight: normal;"><strong>Filmmaker with advanced ALS rallies friends=
 for final documentary</strong> </a></h2>
=09=09=09<!-- Article Content Preview (Black=2C 16px) -->

=09=09=09<div style=3D"font-family: 'Helvetica Neue'=2C Helvetica=2C Arial=
=2C sans-serif; font-size: 14px; color: #000000; line-height: 1.6; margin:=
0 0 16px 0;"><a href=3D"https://us.list-manage.com/13UBCHYQPhR?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DG2CyztNOiD13bKfYgm8iEH9fmPtLBzSJBt7cYeTKEsM4V5drSUb5EU_qBl0Y" title=3D"Fi=
lmmaker with advanced ALS rallies friends for final documentary" rel=3D"no=
follow" style=3D"mso-line-height-rule: exactly;-ms-text-size-adjust: 100%;=
-webkit-text-size-adjust: 100%;color: #1e2559;font-weight: normal;text-dec=
oration: underline;"><img width=3D"700" src=3D"https://alsnewstoday.com/wp=
-content/uploads/2023/02/Hug.png" class=3D"webfeedsFeaturedVisual wp-post-=
image mcRssImage" alt=3D"Two people are pictured from behind with their he=
ads together and their arms around each other in an illustration." style=
=3D"max-width: 100%;width: 100%;padding-bottom: 0;display: inline;vertical=
-align: bottom;border: 0;height: auto;outline: none;text-decoration: none;=
-ms-interpolation-mode: bicubic;" link_thumbnail=3D"1" decoding=3D"async"=
 loading=3D"lazy" srcset=3D"https://alsnewstoday.com/wp-content/uploads/20=
23/02/Hug.png 700w=2C https://alsnewstoday.com/wp-content/uploads/2023/02/=
Hug-380x190.png 380w" sizes=3D"(max-width: 700px) 100vw=2C 700px" border=
=3D"0"></a><p style=3D"margin: 10px 0;padding: 0;mso-line-height-rule: exa=
ctly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust: 100%;color: #202=
020;font-family: Helvetica;font-size: 16px;line-height: 150%;text-align: l=
eft;">Filmmaker and University of Virginia graduate Chris Farina had the i=
dea for a documentary about death and dying about 10 years ago. Now he&#82=
17;s in the final stages of amyotrophic lateral sclerosis (ALS)=2C and is=
 relying on friends to help him complete the project. One of those friends=
 is fellow documentary filmmaker Paul Wagner. &#8220;He&#8217;s [&#8230;]=
</p>
<p style=3D"margin: 10px 0;padding: 0;mso-line-height-rule: exactly;-ms-te=
xt-size-adjust: 100%;-webkit-text-size-adjust: 100%;color: #202020;font-fa=
mily: Helvetica;font-size: 16px;line-height: 150%;text-align: left;">The p=
ost <a href=3D"https://us.list-manage.com/1AEMjiLZyP9?e=3D006462e992&c2id=
=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DP6aPYioTO58eB_huf_eBIrBfnBeNvQRLccNCAuiTtELr1VmkaV6o4iYiwHkJ" style=3D"mso-line-he=
ight-rule: exactly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust: 10=
0%;color: #1e2559;font-weight: normal;text-decoration: underline;">Filmmak=
er with advanced ALS rallies friends for final documentary</a> appeared fi=
rst on <a href=3D"https://us.list-manage.com/c_tIjWnViAj?e=3D006462e992&c=
2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DR4JvT2b2pDkQjzB922EM-sOEsV_qfCKpHCZIUmF-LeJd4tVCvGFkkA75Vgg9" style=3D"mso-line=
-height-rule: exactly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust:=
 100%;color: #1e2559;font-weight: normal;text-decoration: underline;">ALS=
 News Today</a>.</p></div>
=09=09=09<!-- Continue Reading Button (Filled Blue) --><a href=3D"https://=
us.list-manage.com/jPhMG2kHLMS?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DtJI4Ww_oSAsMYxvkNhDYv6tMVGGfPAeAD2j9BsJdYjW9H5lAogI0Vm066S-MT8laWI_OvRRGb1bldlaElBnjEN4cHw=3D=3D" style=3D"display: inline-block;padding: 12p=
x 24px;background-color: #1754FF;color: #ffffff;font-family: 'Helvetica Ne=
ue'=2C Helvetica=2C Arial=2C sans-serif;font-size: 14px;font-weight: 600;t=
ext-decoration: none;border-radius: 6px;mso-line-height-rule: exactly;-ms-=
text-size-adjust: 100%;-webkit-text-size-adjust: 100%;">Continue Reading <=
/a></td>
=09=09</tr>
=09</tbody>
</table>

<table cellpadding=3D"0" cellspacing=3D"0" role=3D"presentation" style=3D"=
background-color: #ffffff;border-radius: 8px;margin-bottom: 12px;border-co=
llapse: collapse;mso-table-lspace: 0pt;mso-table-rspace: 0pt;-ms-text-size=
-adjust: 100%;-webkit-text-size-adjust: 100%;" width=3D"100%">
=09<tbody>
=09=09<tr>
=09=09=09<td style=3D"padding: 16px;mso-line-height-rule: exactly;-ms-text=
-size-adjust: 100%;-webkit-text-size-adjust: 100%;"><!-- Article Title (Bo=
ld) -->
=09=09=09<h2 style=3D"margin: 0 0 12px 0;font-family: 'Helvetica Neue'=2C=
 Helvetica=2C Arial=2C sans-serif;font-size: 18px;font-weight: 700;color:=
 #000000;line-height: 1.3;display: block;padding: 0;font-style: normal;let=
ter-spacing: normal;text-align: left;"><a href=3D"https://us.list-manage.c=
om/gwOR9eMBnEO?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DGu4do9mstmv1lwMdSyQzUNi9N1GbQcF6cYCRqd0mTKxV8Q08In3mRUtQj2pmUBe1YnjtK-Bvf-IbZwP0n16Vumm5WA=3D=3D" style=3D"text-decoration: none;color: #000000;mso-line-heig=
ht-rule: exactly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust: 100%=
;font-weight: normal;"><strong>Personal preferences key to medically assis=
ted death requests in ALS</strong> </a></h2>
=09=09=09<!-- Article Content Preview (Black=2C 16px) -->

=09=09=09<div style=3D"font-family: 'Helvetica Neue'=2C Helvetica=2C Arial=
=2C sans-serif; font-size: 14px; color: #000000; line-height: 1.6; margin:=
0 0 16px 0;"><a href=3D"https://us.list-manage.com/cXwxONnfrLz?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DOwZAgHmjdlAHQnWLgPKNU-PWEwA-_6jadWKOeS4BOgEOS5kw4k0sl3HCz6q5" title=3D"Pe=
rsonal preferences key to medically assisted death requests in ALS" rel=3D=
"nofollow" style=3D"mso-line-height-rule: exactly;-ms-text-size-adjust: 10=
0%;-webkit-text-size-adjust: 100%;color: #1e2559;font-weight: normal;text-=
decoration: underline;"><img width=3D"700" src=3D"https://alsnewstoday.com=
/wp-content/uploads/2026/07/doctor-and-patient-computer-2.png" class=3D"we=
bfeedsFeaturedVisual wp-post-image mcRssImage" alt=3D"A patient sits in a=
 chair speaking to a doctor at a desk who's inputting information on a com=
puter." style=3D"max-width: 100%;width: 100%;padding-bottom: 0;display: in=
line;vertical-align: bottom;border: 0;height: auto;outline: none;text-deco=
ration: none;-ms-interpolation-mode: bicubic;" link_thumbnail=3D"1" decodi=
ng=3D"async" loading=3D"lazy" srcset=3D"https://alsnewstoday.com/wp-conten=
t/uploads/2026/07/doctor-and-patient-computer-2.png 700w=2C https://alsnew=
stoday.com/wp-content/uploads/2026/07/doctor-and-patient-computer-2-380x19=
0.png 380w" sizes=3D"(max-width: 700px) 100vw=2C 700px" border=3D"0"></a><=
p style=3D"margin: 10px 0;padding: 0;mso-line-height-rule: exactly;-ms-tex=
t-size-adjust: 100%;-webkit-text-size-adjust: 100%;color: #202020;font-fam=
ily: Helvetica;font-size: 16px;line-height: 150%;text-align: left;">Among=
 people living with amyotrophic lateral sclerosis (ALS)=2C requests to be=
 referred for medical assistance in dying=2C known as MAiD=2C may have mor=
e to do with individual preferences about life-sustaining interventions th=
an disease severity. That&#8217;s according to a new Canadian study showin=
g that people with ALS using noninvasive ventilation (NIV)=2C a form of br=
eathing support=2C [&#8230;]</p>
<p style=3D"margin: 10px 0;padding: 0;mso-line-height-rule: exactly;-ms-te=
xt-size-adjust: 100%;-webkit-text-size-adjust: 100%;color: #202020;font-fa=
mily: Helvetica;font-size: 16px;line-height: 150%;text-align: left;">The p=
ost <a href=3D"https://us.list-manage.com/2ciuOXjEUOP?e=3D006462e992&c2id=
=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DOfyo4CHs4zzKf_JzJsDEqQp91i4e3I8HEq608tU1tnDBsTj5qsWyKWjsjM9f" style=3D"mso-line-he=
ight-rule: exactly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust: 10=
0%;color: #1e2559;font-weight: normal;text-decoration: underline;">Persona=
l preferences key to medically assisted death requests in ALS</a> appeared=
 first on <a href=3D"https://us.list-manage.com/13y8nfbUMwr?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DA43DKRqeHAZUnViAom-HmPhJgP-28H5YZ3jIb7e-HreqxKp5ttNwVQO7GskA" style=3D"mso-l=
ine-height-rule: exactly;-ms-text-size-adjust: 100%;-webkit-text-size-adju=
st: 100%;color: #1e2559;font-weight: normal;text-decoration: underline;">A=
LS News Today</a>.</p></div>
=09=09=09<!-- Continue Reading Button (Filled Blue) --><a href=3D"https://=
us.list-manage.com/e295LV7dfyP?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DS0feo_hSufx6nsErkbyZBPHLLadmVKCgbzIDCFE7ohHDqlVnHyRWWSVNSjoX2f8iJVHyNQM1NPL0XotCGpYMxBPmWg=3D=3D" style=3D"display: inline-block;padding: 12p=
x 24px;background-color: #1754FF;color: #ffffff;font-family: 'Helvetica Ne=
ue'=2C Helvetica=2C Arial=2C sans-serif;font-size: 14px;font-weight: 600;t=
ext-decoration: none;border-radius: 6px;mso-line-height-rule: exactly;-ms-=
text-size-adjust: 100%;-webkit-text-size-adjust: 100%;">Continue Reading <=
/a></td>
=09=09</tr>
=09</tbody>
</table>

<table cellpadding=3D"0" cellspacing=3D"0" role=3D"presentation" style=3D"=
background-color: #ffffff;border-radius: 8px;margin-bottom: 12px;border-co=
llapse: collapse;mso-table-lspace: 0pt;mso-table-rspace: 0pt;-ms-text-size=
-adjust: 100%;-webkit-text-size-adjust: 100%;" width=3D"100%">
=09<tbody>
=09=09<tr>
=09=09=09<td style=3D"padding: 16px;mso-line-height-rule: exactly;-ms-text=
-size-adjust: 100%;-webkit-text-size-adjust: 100%;"><!-- Article Title (Bo=
ld) -->
=09=09=09<h2 style=3D"margin: 0 0 12px 0;font-family: 'Helvetica Neue'=2C=
 Helvetica=2C Arial=2C sans-serif;font-size: 18px;font-weight: 700;color:=
 #000000;line-height: 1.3;display: block;padding: 0;font-style: normal;let=
ter-spacing: normal;text-align: left;"><a href=3D"https://us.list-manage.c=
om/k0IXdHVPslH?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DIg_6sdec8upGpIbSewTLE3AmQ5Lzh0nl1lZ8Ea34MlVfVmUSoz1KXbNkQeeTQM-MvOeYwX0fz1ssGME4urmCwDlMiw=3D=3D" style=3D"text-decoration: none;color: #000000;mso-line-heig=
ht-rule: exactly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust: 100%=
;font-weight: normal;"><strong>Being an ALS caregiver was as hard emotiona=
lly as it was physically</strong> </a></h2>
=09=09=09<!-- Article Content Preview (Black=2C 16px) -->

=09=09=09<div style=3D"font-family: 'Helvetica Neue'=2C Helvetica=2C Arial=
=2C sans-serif; font-size: 14px; color: #000000; line-height: 1.6; margin:=
0 0 16px 0;"><a href=3D"https://us.list-manage.com/yq0RwyCuIr2?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DxwuFg_PUkeGPPfLV4YwfKS6XNoYru0f1tcQQcvscWxS9Sam04Mc10UVzMmyN" title=3D"Be=
ing an ALS caregiver was as hard emotionally as it was physically" rel=3D"=
nofollow" style=3D"mso-line-height-rule: exactly;-ms-text-size-adjust: 100=
%;-webkit-text-size-adjust: 100%;color: #1e2559;font-weight: normal;text-d=
ecoration: underline;"><img width=3D"800" src=3D"https://alsnewstoday.com/=
wp-content/uploads/2022/08/JulietTaylor_ThunderRoad-800x300.jpg" class=3D"=
webfeedsFeaturedVisual wp-post-image mcRssImage" alt=3D"Banner for Juliet=
 Taylor's column &quot;Thunder Road.&quot; The graphic depicts a couple on=
 a pier overlooking a lake=2C mountains=2C and forest." style=3D"max-width=
: 100%;width: 100%;padding-bottom: 0;display: inline;vertical-align: botto=
m;border: 0;height: auto;outline: none;text-decoration: none;-ms-interpola=
tion-mode: bicubic;" link_thumbnail=3D"1" decoding=3D"async" loading=3D"la=
zy" srcset=3D"https://alsnewstoday.com/wp-content/uploads/2022/08/JulietTa=
ylor_ThunderRoad-800x300.jpg 800w=2C https://alsnewstoday.com/wp-content/u=
ploads/2022/08/JulietTaylor_ThunderRoad-380x143.jpg 380w=2C https://alsnew=
stoday.com/wp-content/uploads/2022/08/JulietTaylor_ThunderRoad-768x288.jpg=
 768w=2C https://alsnewstoday.com/wp-content/uploads/2022/08/JulietTaylor_=
ThunderRoad-1536x576.jpg 1536w=2C https://alsnewstoday.com/wp-content/uplo=
ads/2022/08/JulietTaylor_ThunderRoad-1200x450.jpg 1200w=2C https://alsnews=
today.com/wp-content/uploads/2022/08/JulietTaylor_ThunderRoad.jpg 1800w" s=
izes=3D"(max-width: 800px) 100vw=2C 800px" border=3D"0"></a><p style=3D"ma=
rgin: 10px 0;padding: 0;mso-line-height-rule: exactly;-ms-text-size-adjust=
: 100%;-webkit-text-size-adjust: 100%;color: #202020;font-family: Helvetic=
a;font-size: 16px;line-height: 150%;text-align: left;">When my late husban=
d=2C Jeff=2C was diagnosed with ALS in the fall of 2018=2C there were many=
 unknowns. We didn=E2=80=99t know how fast or slow his progression would b=
e. We didn=E2=80=99t know the course that ALS would take in his body=2C or=
 when we would need interventions like a feeding tube=2C a wheelchair=2C o=
r an [&#8230;]</p>
<p style=3D"margin: 10px 0;padding: 0;mso-line-height-rule: exactly;-ms-te=
xt-size-adjust: 100%;-webkit-text-size-adjust: 100%;color: #202020;font-fa=
mily: Helvetica;font-size: 16px;line-height: 150%;text-align: left;">The p=
ost <a href=3D"https://us.list-manage.com/r1JNOtvfSa5?e=3D006462e992&c2id=
=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DPUBivL-x1g2QRyBV7uez1Y1BoYH8U4PRZVpq3emHB987aZJNYGSZGjjYaaPi" style=3D"mso-line-he=
ight-rule: exactly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust: 10=
0%;color: #1e2559;font-weight: normal;text-decoration: underline;">Being a=
n ALS caregiver was as hard emotionally as it was physically</a> appeared=
 first on <a href=3D"https://us.list-manage.com/kUnGxZLda55?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DNRcwM0NjM6OwC8teZvSyHPULzMb9-5_ogtrhIvVL4CDTFiXWnnVtaRCj0sFu" style=3D"mso-l=
ine-height-rule: exactly;-ms-text-size-adjust: 100%;-webkit-text-size-adju=
st: 100%;color: #1e2559;font-weight: normal;text-decoration: underline;">A=
LS News Today</a>.</p></div>
=09=09=09<!-- Continue Reading Button (Filled Blue) --><a href=3D"https://=
us.list-manage.com/wjgXRxFuyUn?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3D4uLlyhOug67iZlrBowq3HSgxqR91dhKFhWeEgdlYHAUla1dJKfmkGz4QqZ2mQoCd2RNiK7boG3wHvlYYpGLlvGGMFQ=3D=3D" style=3D"display: inline-block;padding: 12p=
x 24px;background-color: #1754FF;color: #ffffff;font-family: 'Helvetica Ne=
ue'=2C Helvetica=2C Arial=2C sans-serif;font-size: 14px;font-weight: 600;t=
ext-decoration: none;border-radius: 6px;mso-line-height-rule: exactly;-ms-=
text-size-adjust: 100%;-webkit-text-size-adjust: 100%;">Continue Reading <=
/a></td>
=09=09</tr>
=09</tbody>
</table>

<table cellpadding=3D"0" cellspacing=3D"0" role=3D"presentation" style=3D"=
background-color: #ffffff;border-radius: 8px;margin-bottom: 12px;border-co=
llapse: collapse;mso-table-lspace: 0pt;mso-table-rspace: 0pt;-ms-text-size=
-adjust: 100%;-webkit-text-size-adjust: 100%;" width=3D"100%">
=09<tbody>
=09=09<tr>
=09=09=09<td style=3D"padding: 16px;mso-line-height-rule: exactly;-ms-text=
-size-adjust: 100%;-webkit-text-size-adjust: 100%;"><!-- Article Title (Bo=
ld) -->
=09=09=09<h2 style=3D"margin: 0 0 12px 0;font-family: 'Helvetica Neue'=2C=
 Helvetica=2C Arial=2C sans-serif;font-size: 18px;font-weight: 700;color:=
 #000000;line-height: 1.3;display: block;padding: 0;font-style: normal;let=
ter-spacing: normal;text-align: left;"><a href=3D"https://us.list-manage.c=
om/7kQS4ILgQof?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3Dsh-N0o3CYMwte4-Zzjok8shF7HzBdRt22hM396TngZx3rqGwOf5RS88Wwqyv9R_z3457JigF3AJYOj6e4AphlBX_MQ=3D=3D" style=3D"text-decoration: none;color: #000000;mso-line-heig=
ht-rule: exactly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust: 100%=
;font-weight: normal;"><strong>Finding moments that transcend the grief of=
 ALS</strong> </a></h2>
=09=09=09<!-- Article Content Preview (Black=2C 16px) -->

=09=09=09<div style=3D"font-family: 'Helvetica Neue'=2C Helvetica=2C Arial=
=2C sans-serif; font-size: 14px; color: #000000; line-height: 1.6; margin:=
0 0 16px 0;"><a href=3D"https://us.list-manage.com/DlnWPj0Uh_w?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DSOeWAU1095abqv1UwOcqk9Wog5pjMCdfg_1KzPraUHwNv4a_1uV0eO4yDXwg" title=3D"Fi=
nding moments that transcend the grief of ALS" rel=3D"nofollow" style=3D"m=
so-line-height-rule: exactly;-ms-text-size-adjust: 100%;-webkit-text-size-=
adjust: 100%;color: #1e2559;font-weight: normal;text-decoration: underline=
;"><img width=3D"800" src=3D"https://alsnewstoday.com/wp-content/uploads/2=
020/09/kristinneva_joyfulsorrow-1024x384.jpg" class=3D"webfeedsFeaturedVis=
ual wp-post-image mcRssImage" alt=3D"Main graphic for &quot;Joyful Sorrow&=
quot; column by Kristin Neva." style=3D"max-width: 100%;width: 100%;paddin=
g-bottom: 0;display: inline;vertical-align: bottom;border: 0;height: auto;=
outline: none;text-decoration: none;-ms-interpolation-mode: bicubic;" link=
_thumbnail=3D"1" decoding=3D"async" loading=3D"lazy" srcset=3D"https://als=
newstoday.com/wp-content/uploads/2020/09/kristinneva_joyfulsorrow-1024x384=
=2Ejpg 1024w=2C https://alsnewstoday.com/wp-content/uploads/2020/09/kristinn=
eva_joyfulsorrow-300x113.jpg 300w=2C https://alsnewstoday.com/wp-content/u=
ploads/2020/09/kristinneva_joyfulsorrow-768x288.jpg 768w=2C https://alsnew=
stoday.com/wp-content/uploads/2020/09/kristinneva_joyfulsorrow-1200x450.jp=
g 1200w=2C https://alsnewstoday.com/wp-content/uploads/2020/09/kristinneva=
_joyfulsorrow.jpg 1400w" sizes=3D"(max-width: 800px) 100vw=2C 800px" borde=
r=3D"0"></a><p style=3D"margin: 10px 0;padding: 0;mso-line-height-rule: ex=
actly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust: 100%;color: #20=
2020;font-family: Helvetica;font-size: 16px;line-height: 150%;text-align:=
 left;">A few months after my husband Todd=E2=80=99s ALS diagnosis=2C we t=
raveled with our children from our home in southeast Wisconsin to meet up=
 with Todd=E2=80=99s sister and brother-in-law at a rented condo overlooki=
ng Lake Delton in Wisconsin Dells. We had recently returned from Mayo Clin=
ic in Minnesota=2C where Todd went to get a second opinion. [&#8230;]</p>
<p style=3D"margin: 10px 0;padding: 0;mso-line-height-rule: exactly;-ms-te=
xt-size-adjust: 100%;-webkit-text-size-adjust: 100%;color: #202020;font-fa=
mily: Helvetica;font-size: 16px;line-height: 150%;text-align: left;">The p=
ost <a href=3D"https://us.list-manage.com/LmzPNKGKtR3?e=3D006462e992&c2id=
=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DzMbfs2IoDnrpDVKiVmjqkaxtTZ0wGt5-sqn5pPI1brg3qKwIWF-ZDMNI_ZO7" style=3D"mso-line-he=
ight-rule: exactly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust: 10=
0%;color: #1e2559;font-weight: normal;text-decoration: underline;">Finding=
 moments that transcend the grief of ALS</a> appeared first on <a href=3D"=
https://us.list-manage.com/14TVdcyOnNa?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DJ2ISTVDpUEl7Myb6VBK8B9Bhdw4Vb-BTxg6nnPbJq4vEY-Dm_9AJOhE6sLNJ" style=3D"mso-line-height-rule: exac=
tly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust: 100%;color: #1e25=
59;font-weight: normal;text-decoration: underline;">ALS News Today</a>.</p=
></div>
=09=09=09<!-- Continue Reading Button (Filled Blue) --><a href=3D"https://=
us.list-manage.com/mh32xUkixcy?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3D-7_7wiBdz5yWaPvDxFmNMhzlTCB5yOCQ5uAoiJAIT2WcCb0JfanCydqaZ-zvtY5vrFrmX-ymeRkTytm2M2g2tfeItg=3D=3D" style=3D"display: inline-block;padding: 12p=
x 24px;background-color: #1754FF;color: #ffffff;font-family: 'Helvetica Ne=
ue'=2C Helvetica=2C Arial=2C sans-serif;font-size: 14px;font-weight: 600;t=
ext-decoration: none;border-radius: 6px;mso-line-height-rule: exactly;-ms-=
text-size-adjust: 100%;-webkit-text-size-adjust: 100%;">Continue Reading <=
/a></td>
=09=09</tr>
=09</tbody>
</table>

<table cellpadding=3D"0" cellspacing=3D"0" role=3D"presentation" style=3D"=
background-color: #ffffff;border-radius: 8px;margin-bottom: 12px;border-co=
llapse: collapse;mso-table-lspace: 0pt;mso-table-rspace: 0pt;-ms-text-size=
-adjust: 100%;-webkit-text-size-adjust: 100%;" width=3D"100%">
=09<tbody>
=09=09<tr>
=09=09=09<td style=3D"padding: 16px;mso-line-height-rule: exactly;-ms-text=
-size-adjust: 100%;-webkit-text-size-adjust: 100%;"><!-- Article Title (Bo=
ld) -->
=09=09=09<h2 style=3D"margin: 0 0 12px 0;font-family: 'Helvetica Neue'=2C=
 Helvetica=2C Arial=2C sans-serif;font-size: 18px;font-weight: 700;color:=
 #000000;line-height: 1.3;display: block;padding: 0;font-style: normal;let=
ter-spacing: normal;text-align: left;"><a href=3D"https://us.list-manage.c=
om/uIGmqy0Yh4e?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3Dz3IlIdwATll1JSLp6Qlfrwq-GPbRWx6u43OEsHFYs9rYX3c-1cSJrO8lR77d8SlgC6ublgNZzOpwzg7e3Z51F1dMDw=3D=3D" style=3D"text-decoration: none;color: #000000;mso-line-heig=
ht-rule: exactly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust: 100%=
;font-weight: normal;"><strong>Enrollment complete in Phase 2b trial of ad=
d-on therapy for adults with ALS</strong> </a></h2>
=09=09=09<!-- Article Content Preview (Black=2C 16px) -->

=09=09=09<div style=3D"font-family: 'Helvetica Neue'=2C Helvetica=2C Arial=
=2C sans-serif; font-size: 14px; color: #000000; line-height: 1.6; margin:=
0 0 16px 0;"><a href=3D"https://us.list-manage.com/Vlj2Gdppvvw?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3Dr9pf9KpL5csPImW2F_9e99dV9VIg4J01KTv3_Q-luSl0MRor33PH41axpRe5" title=3D"En=
rollment complete in Phase 2b trial of add-on therapy for adults with ALS"=
 rel=3D"nofollow" style=3D"mso-line-height-rule: exactly;-ms-text-size-adj=
ust: 100%;-webkit-text-size-adjust: 100%;color: #1e2559;font-weight: norma=
l;text-decoration: underline;"><img width=3D"700" src=3D"https://alsnewsto=
day.com/wp-content/uploads/2024/03/Clinicalwords.png" class=3D"webfeedsFea=
turedVisual wp-post-image mcRssImage" alt=3D"In a crossword-style illustra=
tion=2C the words &quot;clinical trials&quot; appear horizontally in red=
=2C with the words &quot;medicine=2C&quot; &quot;vaccine=2C&quot; &quot;te=
st=2C&quot; &quot;diagnose=2C&quot; and &quot;health&quot; building on the=
 letters vertically=2C in black." style=3D"max-width: 100%;width: 100%;pad=
ding-bottom: 0;display: inline;vertical-align: bottom;border: 0;height: au=
to;outline: none;text-decoration: none;-ms-interpolation-mode: bicubic;" l=
ink_thumbnail=3D"1" decoding=3D"async" loading=3D"lazy" srcset=3D"https://=
alsnewstoday.com/wp-content/uploads/2024/03/Clinicalwords.png 700w=2C http=
s://alsnewstoday.com/wp-content/uploads/2024/03/Clinicalwords-380x190.png=
 380w" sizes=3D"(max-width: 700px) 100vw=2C 700px" border=3D"0"></a><p sty=
le=3D"margin: 10px 0;padding: 0;mso-line-height-rule: exactly;-ms-text-siz=
e-adjust: 100%;-webkit-text-size-adjust: 100%;color: #202020;font-family:=
 Helvetica;font-size: 16px;line-height: 150%;text-align: left;">Enrollment=
 of adults with mild-to-moderate amyotrophic lateral sclerosis (ALS) has b=
een completed in a clinical trial testing PHENOGENE-1A as an add-on treatm=
ent for the neurodegenerative disease. Enrollment of about 105 participant=
s in the Phase 2b trial (NCT07142291) wrapped up in late August=2C and the=
y were randomly assigned to receive one of two doses of PHENOGENE-1A [&#8=
230;]</p>
<p style=3D"margin: 10px 0;padding: 0;mso-line-height-rule: exactly;-ms-te=
xt-size-adjust: 100%;-webkit-text-size-adjust: 100%;color: #202020;font-fa=
mily: Helvetica;font-size: 16px;line-height: 150%;text-align: left;">The p=
ost <a href=3D"https://us.list-manage.com/UAdXjA7Yvsi?e=3D006462e992&c2id=
=3D6d8df1454ee901f23d2c8d3973c45e87&m=3D8sWar7NtBi1pFaI0yBiuToabfRiQ1fDShkGFUmC_DDDz90kYSx8oB-ZmhypU" style=3D"mso-line-he=
ight-rule: exactly;-ms-text-size-adjust: 100%;-webkit-text-size-adjust: 10=
0%;color: #1e2559;font-weight: normal;text-decoration: underline;">Enrollm=
ent complete in Phase 2b trial of add-on therapy for adults with ALS</a> a=
ppeared first on <a href=3D"https://us.list-manage.com/1BjDKAP2xBv?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3DzvT0B_uNuX-emg8LMkMHaLYi2OPwVLXFtwSSZytZBITH7YqkhiidwUL-kkgU" style=
=3D"mso-line-height-rule: exactly;-ms-text-size-adjust: 100%;-webkit-text-=
size-adjust: 100%;color: #1e2559;font-weight: normal;text-decoration: unde=
rline;">ALS News Today</a>.</p></div>
=09=09=09<!-- Continue Reading Button (Filled Blue) --><a href=3D"https://=
us.list-manage.com/m83JrB8rcFo?e=3D006462e992&c2id=3D6d8df1454ee901f23d2c8d3973c45e87&m=3D1PEc-bibMqgIV37ljCWzKGhj7VgAjp8HJ9KFQqfbmafddnGd7ciNdZXsDvxwXTeNAl7CNhy9uW6jFhzjjTqbCPEdhQ=3D=3D" style=3D"display: inline-block;padding: 12p=
x 24px;background-color: #1754FF;color: #ffffff;font-family: 'Helvetica Ne=
ue'=2C Helvetica=2C Arial=2C sans-serif;font-size: 14px;font-weight: 600;t=
ext-decoration: none;border-radius: 6px;mso-line-height-rule: exactly;-ms-=
text-size-adjust: 100%;-webkit-text-size-adjust: 100%;">Continue Reading <=
/a></td>
=09=09</tr>
=09</tbody>
</table>

                        </td>
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=09=09=09=09<!--[if mso]>
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=09=09=09=09<![endif]-->
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                <table align=3D"left" border=3D"0" cellpadding=3D"0" cells=
pacing=3D"0" style=3D"max-width: 100%;min-width: 100%;border-collapse: col=
lapse;mso-table-lspace: 0pt;mso-table-rspace: 0pt;-ms-text-size-adjust: 10=
0%;-webkit-text-size-adjust: 100%;float: left;" width=3D"100%" class=3D"mc=
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                    <tbody><tr>

                        <td valign=3D"top" class=3D"mcnTextContent" style=
=3D"padding-top: 0;padding-right: 18px;padding-bottom: 9px;padding-left: 1=
8px;mso-line-height-rule: exactly;-ms-text-size-adjust: 100%;-webkit-text-=
size-adjust: 100%;word-break: break-word;color: #222222;font-family: Helve=
tica;font-size: 16px;line-height: 200%;text-align: left;">

                            <div style=3D"text-align: center;"><span style=
=3D"font-size:14px"><em><strong>Follow us on social media for exclusive co=
ntent=2C and visit our website to learn about our Advocacy Partners: The A=
LS Association=2C Muscular Dystrophy Association=2C and The ALS Network</s=
trong></em></span></div>

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Bionews Inc.<br>
Bionews Inc.
3 W Garden St
Suite 700
Pensacola=2C FL 32502
USA<br><br>

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